兄弟情:与患埃斯伯格症的哥哥之间的故事

runsly 栏目【学生】【英语学习】 已阅0

27哥哥.jpg


27 Oh, Brother

我爱我的哥哥

I used to feel doomed . I used to worry that I would grow up to be like my brother. I didn't understand why Eric behaved the way he did, and I was afraid I'd catch his problems. Now I understand that my brother and I are different.

我以前常常觉得一切都是命中注定。我常常担心自己长大了会像哥哥一样。我以前不明白为什么埃里克会是那个样子,也很害怕自己会变成他那样。现在我明白了,哥哥和我是不一样的。

Eric has Asperger's syndrome . It means he has a hard time making friends. Sometimes he screams and cries, and he worries about everything. Crowds and noises make him uncomfortable, he hates the way some foods feel on his tongue, and he tears the labels out of his clothes. He doesn't like to be touched. But most of all, having Asperger's syndrome can mean feeling lonely. I think Eric sometimes feels like a puzzle piece that doesn't fit the puzzle. It looks like it should fit, but it doesn't.

埃里克患有埃斯伯格症。这就意味着他很难和别人交朋友。有时他会大哭大叫,对什么事都感到焦虑不安。人群和噪音会令他心神不宁。他讨厌某些食物的口感,还把衣服上的标签扯掉。他不喜欢别人碰他。最糟糕的是,患有埃斯伯格症可能意味着感到孤独。我觉得埃里克有时感觉就像拼图玩具中不合适的一块——看着好像能拼上去, 实际上却不能。

I'm only eight, but everyone asks me to be understanding and patient with Eric. Sometimes it's too much—I just want to be a normal child with a normal family. Sometimes I wish I could just go to live with a different family, or stay in a hotel, just to get away.

我只有八岁,可是大家都要我体谅埃里克,要对他有耐心。有时候真让人受不了——我只想做一个正常的孩子,拥有一个正常的家庭。有时候我希望自己去另一个家庭生活,或者去住旅馆,只要能逃离就好。

Even little things, like getting ready to go out, take ages. Eric can never leave the house without certain toys. It doesn't matter how late we are; he has to find the toys he needs. If he can't find them, he has a tantrum . I get scared, then. When he's having a tantrum, he screams and throws things. He says horrible things-that he hates me, and that I'm stupid-or he hits me. Sometimes I feel like I am the only kid who has to deal with all this. That makes me feel lonely.

即使是一点点小事,比如准备出门,都要拖拖拉拉很长时间。埃里克要是不带上他那几样玩具就绝不肯走出大门。不管我们晚了多久,他一定得找到他要的那些玩具。如果找不到,他就大发脾气。每当这时候,我就会很害怕。他发脾气的时候会尖声叫喊,乱摔东西。他要么说一些很难听的话——他说他恨我,说我是个蠢货——要么就揍我。有时候我觉得自己是唯一一个不得不应付这种事的小孩子。这让我觉得很孤独。

But other times I feel protective of him. Eric gets very nervous with people he doesn't know. When he gets nervous, he doesn't know what to say or do, so he just stands there looking scared. And when he gets scared, he has tics —sometimes he shakes his head, sometimes he sniffs or coughs a lot, sometimes he throws things up in the air, and sometimes he picks at his skin or cuts his clothes. My family is used to his tics, but most kids think it's weird, so they tease him. I am not afraid of other kids. If I was there when they bullied him, I would tell them to leave him alone.

但是有的时候,我觉得我想保护他。埃里克在他不认识的人面前特别紧张。他一紧张就不知道该说什么或者做什么,因此他就只是站在那里,看上去吓坏了的样子。他害怕的时候就会抽搐——有时候会摇头,有时候会使劲抽吸鼻子或者不停咳嗽,有时候会把东西扔到半空中,有时候会掐自己的皮肤或剪自己的衣服。我们家的人对他的抽搐已经习以为常,但是别的孩子大多会觉得他行为古怪,便嘲笑他。我不怕那些孩子。我要是看到他们欺负他,就会警告他们离他远一 点。

Eric is very funny and he likes to act silly a lot of the time. I usually enjoy watching him—he makes me laugh. But sometimes I just don't feel silly. I ask him to stop, but he doesn't. It really gets on my nerves ! Other times, Eric comes into my room while I'm sleeping and wakes me up. He knows I'm sleeping, but he wants to be with me. I know that he feels lonely,so I don't want to get cross , but I really hate it when he wakes me up.

埃里克非常逗,他经常喜欢装傻充愣。我经常喜欢看他表演——他能逗笑我。但是有的时候我不想犯傻。我要他停下来,可他就是不停,真把我气坏了。有时候,埃里克会在我睡觉的时候到我房间里来,把我弄醒。他明知我在睡觉,可他还是想和我玩。我知道他感到孤单,所以我不想对他发脾气,但是我真的很讨厌他把我弄醒。

It's even hard sometimes when Eric just wants to show me he loves me. He likes to hug me or give me a kiss. I love him too, but sometimes it bothers me the way he shows his love: he hugs me too tight, or gives me slobbery kisses. Mum tries to teach him how to be gentle, but he just doesn't seem to get it.

甚至有时,埃里克只是想表示一下他爱我都不是件容易的事。他喜欢抱我或者亲我。我也爱他,可是有时他表达爱的方式真让我受不了:他要不就把我抱得太紧,要不就口水嗒拉地亲我。妈妈也试着教他怎样动作轻一点,可他似乎就是学不会。

#p#分页标题#e#

I know that Eric needs special help, but sometimes I resent that he gets to do special things, even though he misbehaves. And Mum and Dad spend lots of money to get help for Eric, which means that we don't have money left for fun things like holidays.

我知道埃里克需要特殊的帮助,但是有时候即使他表现很差还能受到特殊待遇,我就会觉得很生气。爸爸妈妈为了给埃里克治病花了很多钱,兄弟 埃斯 伯格 哥哥 间的 故事